It was wonderful to see so many new faces at the The EDS Society 2017 Global Learning Conference. I met some wonderful people Everybody was super nice and wanted to learn about how they can help themselves. A special shout out to little Julia who is an amazing little girl. I hope the information I gave you helps, Julia, if you are reading this.
I have included a link to my slides. My apologies that I could not finish the presentations because of time constraints. 50 minutes are just not enough the discuss the complexities of managing pain in EDS. My initial appointments to see a new patient take 5 hours, so you can imagine how difficult it was for me to squeeze all that into 50 minutes. The slides here are a lot more than what you saw at the conference. I have tried to explain my slides as much as I can. I hope it helps.
Please click on the link above and you will be able to download the slides. You do not need a Dropbox account.