1. Connecting the dots in EDS (Ehlers Danlos Syndromes), POTS (Postural Orthostatic Tachycardia Syndrome), MCAS (Mast Cell Activation Syndrome)

 

Part 1: https://www.chronicpainpartners.com/webinar/webinar-eds-pain-management-connecting-dots-april-18-2017/

 

 

Part 2: https://www.chronicpainpartners.com/webinar/eds-pain-management-connecting-dots-part-4/

 

Older presentations from 2014

 

Part 1: https://www.chronicpainpartners.com/webinar/free-webinar-eds-pain-management-part-1/

 

Part 2: https://www.chronicpainpartners.com/webinar/free-webinar-eds-pain-connecting-dots-part-2/

 

2. EDS webinar -2018

Dr. Chopra: Connecting the dots with EDS, POTS, MCAS, GI, Neurological and Physiotherapy in managing pain in EDS

 

3. A guide for parents and teachers of children with EDS

 

4. Knee stabilizing brace

 

5. Insoles or shoe inserts : choose the shoe insert from the Pedag website but you can purchase it a lot cheaper on Amazon

 

6. Complex Regional Pain Syndrome (CRPS)

 

• 2018 CRPS Treatment Update, CRPS Forum, Los Angeles, CA
• 2018 Chronic Pain, CRPS and accusations in Children, Los Angeles, CA
• 2018 Pain Management in Connective Tissue Disorders, Chiari and Syringomyelia Foundation (Disclaimer: the speakers were allotted only 15 minutes each)
• 2017 – Integrative Health Conference for CRPS: Treating the whole person: Optimizing Wellness, RSDSA, Nashville, TN
• 2016 – CRPS/RSD Educational Conference. Learning to live well with chronic pain, Long Beach, CA. Complex Regional Pain Syndrome / RSD: Diagnosis and Management.
• 2014 CRPS Diagnosis and Management – RSDSA, Lafayette, LA
• 2103 CRPS / RSD: Update on Treatments – RSDSA
• 2019 Chronic Pain, Opioids and Low Dose Naltrexone, LDN Research Trust.
• 2013 Chronic pain and Low Dose Naltrexone (LDN), LDN Research Trust
• 2016 Chronic Pain – how to talk to your doctor, Rare New England
• 2013 Sleep and CRPS
• 2016 Management of Chronic Pain with Low Dose Naltrexone (LDN), LDN Research Trust
• 2016 Chronic Pain Management in adults and children with CRPS, EDS, Children’s Hospital of Orange County, CA
• 2016 Mechanism of action of LDN (Low Dose Naltrexone), LDN Research Trust
• 2014 Dealing with pain in EDS and neuropathic pain co-morbidities, The Coalition Against Pediatric Pain (TCAPP) Think Tank meeting

 

Treatments For POTS

Exercise is the key here.

Lie down to exercise.

Dallas protocol.

Pool Exercise  – simple walking, treading water

 

 

Exercises in pool:

 

 

This helpful video is also good for CRPS/RSD

 

Resources for POTS, Dysautonomia :- 

Dysautonomia Support Network
https://www.dysautonomiasupport.org/

Dysautonomia International
http://www.dysautonomiainternational.org/

EDS Awareness
https://www.chronicpainpartners.com /

 

 

• https://www.pawswithacause.org
• http://www.neads.org
• http://freedomservicedogs.org
• Dysautonomia Support Network help raise funds for service dogs

https://www.dysautonomiasupport.org/

 

 

Compression garments for EDS, POTS

https://cw-x.com/product-category/women/tights-shorts/

 

https://cw-x.com/product/endurance-generator-tights-women/

Posture correction bras

https://www.leonisa.com/en/bras/back-posture-corrector/

 

Dental Gel for EDS

https://getlivfresh.com/

 

Knee braces

Gripper: https://www.amazon.com/MedSpec-Gripper-Hinged-Brace-Medium/dp/B00BZZZJ8C?th=1

 

 

 

 

Wheelchair friendly beaches

https://www.nationalgeographic.com/travel/lists/most-accessible-wheelchair-friendly-beaches/