Resources for patients

Resources for patients

 

 

 

  1. Connecting the dots in EDS (Ehlers Danlos Syndromes), POTS (Postural Orthostatic Tachycardia Syndrome), MCAS (Mast Cell Activation Syndrome)

 

Part 1: https://www.chronicpainpartners.com/webinar/webinar-eds-pain-management-connecting-dots-april-18-2017/

 

 

Part 2: https://www.chronicpainpartners.com/webinar/eds-pain-management-connecting-dots-part-4/

 

Older presentations from 2014

 

Part 1: https://www.chronicpainpartners.com/webinar/free-webinar-eds-pain-management-part-1/

 

Part 2: https://www.chronicpainpartners.com/webinar/free-webinar-eds-pain-connecting-dots-part-2/

 

  1. EDS webinar -2018

Dr. Chopra: Connecting the dots with EDS, POTS, MCAS, GI, Neurological and Physiotherapy in managing pain in EDS

 

  1. A guide for parents and teachers of children with EDS

 

  1. Knee stabilizing brace

 

  1. Insoles or shoe inserts : choose the shoe insert from the Pedag website but you can purchase it a lot cheaper on Amazon

 

  1. Complex Regional Pain Syndrome (CRPS)

 

 

Treatments For POTS

Exercise is the key here.

Lie down to exercise.

Dallas protocol.

Pool Exercise  – simple walking, treading water

 

 

Exercises in pool:

 

 

This helpful video is also good for CRPS/RSD

 

Resources for POTS, Dysautonomia :- 

Dysautonomia Support Network
https://www.dysautonomiasupport.org/

Dysautonomia International
http://www.dysautonomiainternational.org/

EDS Awareness
https://www.chronicpainpartners.com /

 

 

https://www.dysautonomiasupport.org/

 

 

Compression garments for EDS, POTS

https://cw-x.com/product-category/women/tights-shorts/

 

https://cw-x.com/product/endurance-generator-tights-women/

Posture correction bras

https://www.leonisa.com/en/bras/back-posture-corrector/

 

Dental Gel for EDS

https://getlivfresh.com/

 

Knee braces

Gripper: https://www.amazon.com/MedSpec-Gripper-Hinged-Brace-Medium/dp/B00BZZZJ8C?th=1

 

Wheelchair friendly beaches

https://www.nationalgeographic.com/travel/lists/most-accessible-wheelchair-friendly-beaches/