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The EDS Society 2017 Global Learning Conference

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It was wonderful to see so many new faces at the The EDS Society 2017 Global Learning Conference. I met some wonderful people  Everybody  was super nice and wanted to learn about how they can help themselves. A special shout out to little Julia who is an amazing little girl. I hope the information I gave you helps, Julia, if you are reading this.

I have included a link to my slides.  My apologies that I could not finish the presentations ...

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Ehlers Danlos Syndrome part 1

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Heritable Disorders of Connective Tissue (HDCT) is defined by the conglomeration of generalized Joint Hypermobility (JHM), widespread fatigue, joint instability including recurrent subluxations and dislocations, musculoskeletal pain, chronic arthralgia, abnormal stature, early onset osteoarthritis, easy fragile fractures, cardiovascular, autonomic, ocular, dental, visceral, auditory, skin, ligament, tendon abnormalities (12, Castori, 13, Hakim).

Heritable Disorders of Connective Tissue (HDCT) consists of Ehlers Danlos Syndrome, Marfan’s syndrome, Osteogenesis Imperfecta, Stickler Syndrome, Loeys-Dietz syndrome and other connective tissue disorder.  Of these Ehlers Danlos Syndrome is ...

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